Scanxiety is a well used word in cancer survivorship, but I have added a new one - adminnoyance. What can we do on each side of the doctor's desk, to minimise one and maybe even abolish the other?
This is an invaluable resource and insight for anyone working with cancer. Absolutely amazing work and recommend to every clinician working with patients to read it, gain patient perspective and become better doctors !
Thank you all for sharing your story. I really hate the "no news is good news" strategy. Is that supposed to save time & money? It's brutal. Just brutal.
And I can't tell you how many times I've received those cryptic messages at 4p on a Friday.
Arrgh!
Escalating to management... I'll bet you dollars to pounds sterling that management does not wait for *their* scans.
Most of the people I've connected with on Substack cancer community are from the UK, and I find the differences between our two nations' healthcare-industrial complexes fascinating.
Yes I agree about different healthcare systems. I think you get more choice in the US in terms of which specialist you see, but I think health poverty can be very bad there - I’m glad we have a free-at-point-of-use system here but we pay less than many other nations so more investment is needed. If this was done, in the right places, with the right sort of staff, it could be brilliant.
;-) Welcome, Anthony! (FYI the @ works to notify folks in notes but not in comments for some reason).
Yes there are pros and cons and a heap of issues with every healthcare system, the tiny countries like Singapore and Switzerland are the best - for obvious reasons. In Singapore, every citizen is required to open a bank account to save a portion of their income for future health expenses. Swiss employers split healthcare insurance with their employees. I loved living there; the standard of care in hospitals AND primary care is impressive.
This is an invaluable resource and insight for anyone working with cancer. Absolutely amazing work and recommend to every clinician working with patients to read it, gain patient perspective and become better doctors !
Thank you so much - this means a lot having read your articles!
Thank you all for sharing your story. I really hate the "no news is good news" strategy. Is that supposed to save time & money? It's brutal. Just brutal.
And I can't tell you how many times I've received those cryptic messages at 4p on a Friday.
Arrgh!
Escalating to management... I'll bet you dollars to pounds sterling that management does not wait for *their* scans.
Most of the people I've connected with on Substack cancer community are from the UK, and I find the differences between our two nations' healthcare-industrial complexes fascinating.
Thanks @carermentor for tagging me on your note!
Yes I agree about different healthcare systems. I think you get more choice in the US in terms of which specialist you see, but I think health poverty can be very bad there - I’m glad we have a free-at-point-of-use system here but we pay less than many other nations so more investment is needed. If this was done, in the right places, with the right sort of staff, it could be brilliant.
;-) Welcome, Anthony! (FYI the @ works to notify folks in notes but not in comments for some reason).
Yes there are pros and cons and a heap of issues with every healthcare system, the tiny countries like Singapore and Switzerland are the best - for obvious reasons. In Singapore, every citizen is required to open a bank account to save a portion of their income for future health expenses. Swiss employers split healthcare insurance with their employees. I loved living there; the standard of care in hospitals AND primary care is impressive.
I agree, Rachel. You've laid out essential points and tangible actions, thank you!
I think we have muted Scanxiety to 'in limbo or stasis'. I don't think I'll ever get used to adminnoyance - hence my mantra 'never assume!.'